Thursday, October 2, 2014

Foot Surgery Anniversary!!!

      I cannot believe it has been 3 years since I visited my Blog...it is amazing how time flies.  Today is the 1 month anniversary of my foot surgery.  Yeah!! I have made it a month maintaining my sanity (mostly).  Doctors put a couple screws into my heel and a plate and bone graft into the bones of my arch to move my foot into the best position.  They also went into my calf with about a 3 inch incision to sever a tendon that will give my foot more flexibility.  Apparently I was full of arthritis as well so they debrided that so I am back to having a young persons foot...ok well I can dream!  I cannot put weight on that foot for a total of 3 months, then I will slowly begin physical therapy and working towards my new "normal".  My job you ask?? Well I am in retirement practice this year since I will be out for most of the school year.  Thankfully I have a wonderful team and a very capable substitute.  
     Before my surgery on September 4th my wonderful boys and husband helped me get my 10'x10' "cell" ready for my medical incarceration.  I am in close proximity to my mini fridge, lift chair, walker, bed, medicines (including Lupron to stave off blood clots), books, painting supplies, crocheting, ukulele, guitar, television, magazines, computer, wheelchair and of course the bathroom.  I have been reminded how lucky I am to not have a cellmate and public toilet. This is true! Even with this wonderfully stocked cell, time seems to stand still occasionally and I find myself staring at the wall wondering how I will make it another couple months.  I thank God for my little Sanity Angels that text daily and visit occasionally...My loving Mom calls me at least twice a day to help break up my time with her humor and wisdom.   I am not really up for many visitors because I often sit around in braless jammies pondering life.  I was able to get a temporary release from my incarceration to visit at Happy Hour once so far, that was amazing....Many of my favorite teacher friends lovingly came to spend some time with their crazy incarcerated friend.....unfortunately it stressed my foot out and that night it felt very swollen in the cast.  
     Initially following surgery I had excruciating pain in not only my foot but behind my knee where they did a nerve block.  The pain was so bad the surgeon kept me for 2 nights in the hospital as opposed to the scheduled 1 night stay.  Between narcotics and elevating my foot above my heart we were able to suspend the pain for limited times.  Day 2 I went home and have mostly been sitting reclined to keep swelling down.....I have not used narcotics since the first week home.  Tylenol with Codeine has been helpful a few nights when sleeping was difficult.  Now I am happy to say I use regular Tylenol occasionally, mostly for headaches.  I am thankful a month is done, hopefully onto better days and a dance class by summer! I better get myself dressed and clean my cell...I have a couple of angels visiting today. 

Saturday, July 30, 2011

Blessed Vacation

Is it possible that I finally got to go on a family vacation?? Yep, after being with my husband for almost 26 years we actually flew to Honolulu with Chris and Cory for a weeks vacation. 

Let me tell you how blessed I felt that we actually made it to that plane.  As you know my family has been challenged medically the last 7 years, so when I made those reservations 6 months ago I had fingers, toes and eyes crossed that nothing would happen to conflict with these plans.  Months passed, MRI's, chemo treatments, doctor appts., Lupron shots, and surgeries (for me) came and went and the time ticked down to vacation day.  Would everyone be healthy?? So on July 17th when that Delta flight took off from Los Angeles I sat next to my son Chris saying my silent "thank you's" to the "Big Guy" upstairs.  My personal angel, my brother Chris, was in my silent conversations that day too, oh how I wish he could have seen us going on this wonderful trip.  My husband (who is also a cancer survivor) sat behind me with my healthly little Cory excitedly looking out the window.  We were actually on the flight, luggage stowed, on our way to a week of repreve from doctors, treatments and responsibilities.  Worry never seems to take a vacation, but I think it can be numbed slightly......

We enjoyed 7 days snorkeling, kayaking, swimming, shopping and touring the island.  Our daughter Stephanie lives in Honolulu with her sailor husband Andrew and their 3 kids, Alaina, Jacob and Brayden too, so it was fun catching up since we hadn't seen them since Christmas.  I never did get to a Luau so I guess I will have to plan another island adventure.  If I never get back again I already feel like I had the greatest Hawaiian family adventure EVER!! To steal a line from one of my favorite movies, Hope Floats, "My Cup Runneth Over!"

Sunday, March 13, 2011

Christopher's Bio

Christopher is being nominated as one of the Most Remarkable Riverside Teens this year (goes up to age 21).  I was asked to write a bio, this is the quick bio I wrote in 3rd person ( a little impersonal) but thought I would share.  Gotta love that kid, he is always remarkable to me!

Christopher A. Chesebro


        Christopher was born on August 25, 1990 in Orange, California.  He was a big guy from the beginning, 10 pounds 9 ounces, and has continued breaking the height “norms” ever since. Christopher moved to Riverside in October of 1992, he began going to school in the Alvord school district in 1995.  Due to anxiety he struggled in school, but throughout his years he had some very supportive and wonderful teachers.  Christopher would get D’s and C’s on his report cards sometimes, with comments from teachers who loved having him in class.  He was funny, polite and helpful, even while struggling.  Christopher started High School at Norte Vista in August of 2005.  During his freshman year he joined the FFA through Mr. Hively’s agriculture program. 
On February 22, 2006, Christopher got up somewhat nervous about going with his dad and little brother out to the Indio fair to show his pig for the first time.  Following his turn in the ring with his pig, Christopher started to feel sick, ultimately collapsing and needing to be taken to the hospital by ambulance.  Due to Christopher swinging his arms (apparently due to pressure within his skull) it took many men to get him strapped onto the gurney.  The fire squad took him to the local hospital, John F. Kennedy, which didn’t have a neurology department.  Luckily the emergency doctor on call recognized the neuro symptoms and ordered a CT scan and wanted him taken quickly to Loma Linda where he would get the best care.  Unfortunately this would take 4 hours due to Christopher’s instability, all this time the pressure was building to a degree where he could have died at any moment. 
A huge helicopter carrying Christopher and multiple health professionals landed at Loma Linda while family and friends waited frantic, not knowing what was happening.  Christopher was put in the care of Dr. Renata Osterdock, Chief Pediatric Neurosurgeon when he arrived at Loma Linda.  She did a life saving initial procedure that evening, drilling into his skull relieving the spinal fluid that was causing severe hydrocephalus.  Christopher’s parents and family were told that night that he had a small 1% chance of surviving.  The doctor told his parents in no uncertain terms “these children die”.  When looking at the initial CT scan it appeared Christopher had no brain matter left, the hydrocephalus was so bad and had almost completely filled the center sections of Chris’ brain.  His brain had been forced against the inside of his skull; his scan appeared almost completely black, filled with spinal fluid.  The cause of this, which doctors quickly determined, was a lemon sized cancerous pineal tumor at the base of Christopher’s brain.  This tumor had herniated, blocking the spinal fluid from normally flowing freely through his brain and back into his spine.  Doctors were astonished that this did not kill Christopher before they had the drain in place, most patients die due to the tumor rupturing, pushing brain matter and the brain stem into the spinal column. 
Christopher’s parents were told, during the 11 days he was unconscious, that if he did wake up he would probably not be able to see, hear, walk, or talk.  They were told that if he was lucky enough to be able to see, he may not know who they were, or remember anything about his life.  On day 11, Christopher opened his eyes, and looked at his mom.  His mom asked him who she was and he shrugged and got a weird look on his face and said…”Mom!” His family knew it would be a long journey, but they knew Christopher was back.
Doctors have been amazed by Christopher’s recovery, due to the damage of his eyes his Ophthalmologist doesn’t know how he can walk without assistance.   Due to balance issues, he does use a wheelchair and walker during different situations, but around the house Christopher can walk without assistance, amazing his doctor. 
Christopher was treated with radiation and chemotherapy in 2006 while his family stayed close by at the Ronald McDonald house in Los Angeles.  He had acute inpatient physical, speech, and occupational therapy so he could feed himself again, swallow correctly and relearn all the daily things and regain his physical strength. 
Christopher left Norte Vista High School that fateful morning in 2006 and has since done home and hospital classes and returned to the Norte Vista RCOE on campus special education program.  That in and of itself should show the character of this young man, he left Norte Vista High School to go on a field trip as a strapping, tall healthy “normal” student and returned 2 years later on the “special” bus willingly, in a wheelchair and with some brain damage, to continue his education.  He has most recently been struggling with home and hospital classes again, now deciding to pursue an independent degree. 
Christopher has gone to his mothers classroom to visit her students over the past few years, since he stands about 6’ 7” tall and wears a size 14 shoe her students always love seeing him.  The students knew the quick version of how doctors considered his recovery miraculous so they were thrilled to get to compare their little (Kinder-3rd grade) hands to his when giving him “high 5” and to see him reach up and touch the roof without jumping.  Christopher enjoys visiting the students as much as they love seeing him and being able to “touch a miracle”.
Christopher has had complications with his brain surgeries; he has had to have shunt surgery to keep pressure down in his head, plastic surgeries to correct wounds that wouldn’t heal due to radiation damage.  He has had a pic line which is a direct line to his heart for his parents to administer antibiotics due to infections, he has had wounds packed and hundreds of blood tests and maintenance MRI’s. 
Christopher found out in July 2010 that his cancer had returned, he was again facing dangerous brain surgery close to his brain stem and subsequent chemotherapy.  Christopher could not get any more radiation on his tumor because he had received the full dose in 2006.  In August of 2010 he again underwent brain surgery, followed by a muscle flap to repair previous wound damage and chemotherapy. 
Most recently, Chris’ Neuro Oncologist has decided to change the chemotherapy, which doesn’t seem to be aggressive enough, to a new medication.  He will start this IV infused medication Monday, March 14, 2011. 
Christopher enjoyed riding his mini-bike, and was looking forward to driving his own car one day.  He had all the normal aspirations in life; unfortunately his life was interrupted with cancer and the subsequent treatments and devastation to his body.  Christopher has found other ways to fulfill his driving, he has his own golf cart to drive in his backyard, and the wonderful people at Pole Position accommodate him at any time.  With Christopher’s sense of humor and optimism his family knows he will do well on this new treatment.  He is already a miracle!

Friday, March 4, 2011

Is Cancer a Workman's Comp claim??

Am I just confused or isn't an injury filed for workmans comp something that happened due to a workplace event?
Today Christopher went for another MRI to see how close to liquified death his brain tumor has become.  Once the doctor reads the MRI he will determine the proper dose of chemotherapy to start on Tuesday, this will be his 5th round during this most recent attack.  So far this chemo is taking a brave stand against this monster, if it needs backup the doctor has a plan, so that is great news.  Like a mighty Cancer Fighting Warrior this Neuro-Oncologist sends in his best troops, always using his peripheral vision, knowledge, experience and common sense to keep a microscopic watch on the invading troop all while planning for any other needed support. If needed this allied backup may come by way of UCLA Medical Center Cancer Fighting doctors and their state of the art methods and medications.  I am so thrilled to have all these super troupers on our side.
Back to the Workmans Comp situation... We go into the MRI center, where they have been seeing Christopher for over 5 years, and they ask me if this is a workmans comp case....I sit there kinda with my usual "duh" look on my face and kinda chuckle and say, "well if brain cancer is caused by work"...chuckle, chuckle...thinking she will catch herself, since she has Christopher file in front of her, but she just sits there with a wide eyed, blank look on her face...Really?? Am I missing something?

Monday, February 28, 2011

So Here We go...

I have often admired the blogs of others, always thinking one day I would create one of my own.  Since I am out of work on disability I thought this might be the best time to get started.  What a fun way to express concerns, complaints, experiences and to just "vent".  This may be a step towards a better sense of sanity....well, time will tell.  I gave my blog this name due to the amount of times I have heard people say it to me, this saying at times has its calming qualities and other times I just want to smack whomever is telling me in an ever so condensending matter to basically "deal with it!". You may think I have a huge chip on my shoulder, and I might, but over the past 7 1/2 years my family has been through its share of hardship and grief.  Let me give you a quick synopsis so I don't bore you to tears.  Of course I feel this overview is necessary so you can understand some of my future blogs. 

December 2nd 2003, One day following the celebration of my 40th birthday my husband had his prostate removed since it was determined in August of '03 that he had prostate cancer.  He came through it wonderfully and is now being treated with "girl hormones" , Lupron, to keep the cancer, which apparently has spread, at bay. 

February 22, 2006, My 15 year old 6'5" son collapsed at the Indio fair during what was supposed to be his first FFA event.  Ultimately, and through much prayer he survived a lemon sized cancerous brain tumor which was removed.  He had only a 1% chance of survival that night, we sat stunned waiting over 11 days to see if he would wake up.  (Many future blogs to follow will showcase his amazing survival)

August 2007, My Mother was diagnosed with breast cancer, it was only stage 1 and she is doing well following treatment. 

October 2007, My daughter was taken to the hospital with what they determined to be a severe migraine, luckily her boyfriend saw more and called me refusing to take her home.  She was having stroke symptoms (mind you my daughter was only 23 years old), slurred speak, weakness in left arm, severe headache...after some yelling and screaming they did further tests and determined she had a blood clot of significant size in her brain...YIKES! She was treated and is on blood thinners now doing pretty well. 

December 31, 2007, My 46 year old police officer brother died suddenly and unexpectedly from a massive heart attack.  This was a huge blow to our family because he was my only sibling and one of the kids favorite people on the planet.

August 2010, My now 20 year old son was told his brain cancer has returned, he is currently taking chemotherapy, and having MRI's every other month to track the death of this cancerous monster...so far so good.

I know this is a stinky, negative post, but it is a good way for me to get started and to set a little background.  If I come across tainted and bitter somedays I am sorry, I will try to be up and optimistic and share some great and wonderful things too...